In my life I have felt so much relief from other women’s stories of overcoming adversities in their life that I felt it was my turn to share my story. My second daughter Luciana (Lulu) was born with a rare chromosomal 8 abnormality of which there are only 64 cases documented. When the NICU Doctor told us her diagnosis he couldn't tell us much. He didn't know what this meant for Lulu's quality of life nor what our day to day would look like with her. After staying in the NICU for a couple of months, we finally brought Luciana home. The days and months that followed her birth were long, dark and sad. I was grieving the life I had envisioned for our family of four. But even more than that I was concerned for our baby girl Lulu.
With the help of family, friends and our faith we established a new normal. We challenged ourselves to have her drink all of her bottles on her own so we could take her peg tube out (a tube inserted in the stomach where food is put in with a syringe). Six months later we celebrated her peg tube being taken out. We knew enough at this point that if we wanted Luciana to walk, talk and do anything for herself she would have to work very hard at therapy. She was only 4 months when we enrolled her in all the different types of therapies and even some alternative therapies. It's so eye-opening to look back and see how narrow-minded my idea of a perfect sibling relationship looked like before I had Lulu. I thought it could only look one way—and that way was with two healthy sisters chasing each other and playing. But, now 5 years later I see that it could be just as perfect with Valentina pushing/racing with her little sister in her wheelchair.
Two years after Lulu was born we took a leap of faith and got pregnant again. I was hesitant at first to get pregnant because of the "what if’s,” such as “what if we had another daughter with special needs?" We love Lulu so much and couldn't picture life without her. But could we handle two special needs children? Despite our concerns we came to an agreement that if we were blessed with another child with special needs, then I guess we were meant to have two children with special needs. One year later we had a beautiful healthy baby girl and named her Rose.
After the birth of Rose something in my brain switched! I had always wanted to have my own clothing line. I studied fashion design and I had interned in the industry for a couple of amazing designers like the sisters from Rodarte. But after having Luciana I thought for certain that was one dream that would not come to be. However, with that “switch” that took place I also felt empowered. Empowered by my decision to have another child despite my fears. I thought to myself, what else am I not doing because of fear. The answer was clear. I was not pursuing my dream of becoming a fashion designer. I decided to stand up to my fears that day and went for it. One year later I launched my first collection
Here we are three years later since establishing my clothing line. Luciana is now 6 years old and is practicing walking with a walker. She can say "Mom", ‘more," and “hi." I have a clothing line I am proud of. But, most importantly I have shown myself (and my 3 daughters) that although life can send you some extremely difficult challenges, there is always a way to achieve your dreams.
https://scrapbox.io/DIAMOND16/Diamond168
https://diamondlnwpg168.com/
https://github.com/Programming-from-A-to-Z/A2Z-F15/issues/30
https://github.com/defunkt/ambitious_activeldap/issues/14
https://github.com/openai/sparse_attention/issues/13
https://github.com/dashpradeep99/https-github.com-miguellgt-books/issues/6
https://github.com/HoyDiamond/DiamondSeo01/issues/1
https://github.com/cy4nguy/PythonSimpleKeylogger/issues/3
https://github.com/gzc/isystem/issues/1
https://github.com/SaeruHikari/SakuraEngine-Old/issues/3
https://github.com/xyba1337/ValorantEZTS/issues/3
https://github.com/henryjeff/portfolio-website/issues/16
https://github.com/EllanJiang/GameFramework/issues/76
https://github.com/HoyDiamond/DiamondSeo01/issues/2
https://github.com/qianjiahao/MongoDB/issues/2
https://github.com/u21h2/nacs/issues/13
https://github.com/Programming-from-A-to-Z/A2Z-F15/issues/31
https://www.paiklangna.com/
https://github.com/rafaballerini/GitTutorial/issues/200
https://github.com/Yalantis/uCrop/issues/948
https://scrapbox.io/DIAMOND16/Diamond168
https://diamondlnwpg168.com/
https://github.com/Programming-from-A-to-Z/A2Z-F15/issues/30
https://github.com/defunkt/ambitious_activeldap/issues/14
https://github.com/openai/sparse_attention/issues/13
https://github.com/dashpradeep99/https-github.com-miguellgt-books/issues/6
https://github.com/HoyDiamond/DiamondSeo01/issues/1
https://github.com/cy4nguy/PythonSimpleKeylogger/issues/3
https://github.com/gzc/isystem/issues/1
https://github.com/SaeruHikari/SakuraEngine-Old/issues/3
https://github.com/xyba1337/ValorantEZTS/issues/3
https://github.com/henryjeff/portfolio-website/issues/16
https://github.com/EllanJiang/GameFramework/issues/76
https://github.com/HoyDiamond/DiamondSeo01/issues/2
https://github.com/qianjiahao/MongoDB/issues/2
https://github.com/u21h2/nacs/issues/13
https://github.com/Programming-from-A-to-Z/A2Z-F15/issues/31
https://www.paiklangna.com/
https://github.com/rafaballerini/GitTutorial/issues/200
https://github.com/Yalantis/uCrop/issues/948
https://gist.github.com/rfgytrhfd/4c65ea26514fb2f9c4f8eb22fa65d3d5
https://gist.github.com/rfgytrhfd/55a4283a76aab547b9e9445088ce9490
https://gist.github.com/rfgytrhfd/52dbf87939f25d2e1a0bd8d5607bbe80
https://gist.github.com/rfgytrhfd/dc707828b104d9a82219bba251b9d972
https://gist.github.com/rfgytrhfd/b574eeb89ee9c8aa5d5764e3232e4c61
https://gist.github.com/gfhjgy567/545081407769049757d5556e2c5c971e
https://gist.github.com/gfhjgy567/3d44191bda3c195153a1b600b3f7eecc
https://gist.github.com/gfhjgy567/75e60d2338aad90001a454bf5275f585
https://gist.github.com/gfhjgy567/233f73edd7ce8e0c9819103132b0f732
https://gist.github.com/gfhjgy567/2be1d2468db51512dddbee3ee873210d
https://gist.github.com/gfhjgy567/2e75e119e86944aebb157e152979c4dc
https://gist.github.com/vikyttrty4578/6b7fd5a49c8345ecdfa90c96ac4ce657
https://gist.github.com/vikyttrty4578/f6fd03c0982fd509fa385e291b6e5265
https://gist.github.com/vikyttrty4578/d522f1413ad842777c186302d8e559f2
https://gist.github.com/vikyttrty4578/89a3200e3f3bd52e785bf61df3ffa570
https://gist.github.com/vikyttrty4578/e5a6e5a0d7069a37b9d923868563a67f
https://gist.github.com/vikyttrty4578/7513409875d82f0018b2a6bf71f0a9bb
https://gist.github.com/fghyuicouov/3467abaf49d9cf059e8e948e8fd28dd7
https://gist.github.com/fghyuicouov/f4fbd8f433e5fbc82b23995c6e864945
https://gist.github.com/fghyuicouov/a22253ff5892d6a3210cb6e3ba37e853
https://gist.github.com/fghyuicouov/f3242ad76c8664256b9da0c41b4d4a33
https://gist.github.com/fghyuicouov/bbf8e9b1751c9e4a9cb78dd5b2eabeb2
https://gist.github.com/fghyuicouov/a16cfcfaad4fb3ab40ecb87a4e2b7909
https://gist.github.com/segawik702/d44f89ef00bba20544b761cec17ad987
https://gist.github.com/segawik702/dfe1fa04c47c2c4f6bb6cd0dbd4c2ced
https://gist.github.com/segawik702/dd52943d88dea47b57dda6d1a3ebdb35
https://gist.github.com/segawik702/3c6ea8283f41bd0e55510b767b66e060
https://gist.github.com/segawik702/126e39bf2b355cb46b44064abaef165b
https://gist.github.com/segawik702/4b7ecce7f42e19e8f29df08154b326ec
https://gist.github.com/dhtryrtfh467/5c3cefe0fc3aab3c68a99ff78f555379
https://gist.github.com/dhtryrtfh467/1272140b27179ea61c7c9ca094576160
https://gist.github.com/dhtryrtfh467/54a06147864e16e9b0b2ef2e22ffbbc4
https://gist.github.com/dhtryrtfh467/6d6233c1c27f76f963c3f6b010e47ca1
https://gist.github.com/dhtryrtfh467/5ba5222b3641b224464ff700fb09de42
https://gist.github.com/dhtryrtfh467/2fffd98bdff908ec64d030ad58c533a2
https://gist.github.com/bxcedfg67678/a6ba2b51ed7b927d97d582df39bf0dc2
https://gist.github.com/bxcedfg67678/da3eaa88cd8474aa71d4371e44caa6b2
https://gist.github.com/bxcedfg67678/279000ba324dd738d647d97c80f6521c
https://gist.github.com/bxcedfg67678/2c02f30abf8c4d3766c51661528427bd
https://gist.github.com/bxcedfg67678/888b12129e0d26fe248ffb5605fe63b2
https://gist.github.com/bxcedfg67678/2a3efae0c2d9d0846089474c500f4928
https://gist.github.com/bxcedfg67678/57055625db49b021cb6ab7cc4d004b45
https://scrapbox.io/DIAMOND16/Diamond168
https://diamondlnwpg168.com/
https://github.com/Programming-from-A-to-Z/A2Z-F15/issues/30
https://github.com/defunkt/ambitious_activeldap/issues/14
https://github.com/openai/sparse_attention/issues/13
https://github.com/dashpradeep99/https-github.com-miguellgt-books/issues/6
https://github.com/HoyDiamond/DiamondSeo01/issues/1
https://github.com/cy4nguy/PythonSimpleKeylogger/issues/3
https://github.com/gzc/isystem/issues/1
https://github.com/SaeruHikari/SakuraEngine-Old/issues/3
https://github.com/xyba1337/ValorantEZTS/issues/3
https://github.com/henryjeff/portfolio-website/issues/16
https://github.com/EllanJiang/GameFramework/issues/76
https://github.com/HoyDiamond/DiamondSeo01/issues/2
https://github.com/qianjiahao/MongoDB/issues/2
https://github.com/u21h2/nacs/issues/13
https://github.com/Programming-from-A-to-Z/A2Z-F15/issues/31
https://www.paiklangna.com/
https://github.com/rafaballerini/GitTutorial/issues/200
https://github.com/Yalantis/uCrop/issues/948
https://scrapbox.io/DIAMOND16/Diamond168
https://diamondlnwpg168.com/
https://github.com/Programming-from-A-to-Z/A2Z-F15/issues/30
https://github.com/defunkt/ambitious_activeldap/issues/14
https://github.com/openai/sparse_attention/issues/13
https://github.com/dashpradeep99/https-github.com-miguellgt-books/issues/6
https://github.com/HoyDiamond/DiamondSeo01/issues/1
https://github.com/cy4nguy/PythonSimpleKeylogger/issues/3
https://github.com/gzc/isystem/issues/1
https://github.com/SaeruHikari/SakuraEngine-Old/issues/3
https://github.com/xyba1337/ValorantEZTS/issues/3
https://github.com/henryjeff/portfolio-website/issues/16
https://github.com/EllanJiang/GameFramework/issues/76
https://github.com/HoyDiamond/DiamondSeo01/issues/2
https://github.com/qianjiahao/MongoDB/issues/2
https://github.com/u21h2/nacs/issues/13
https://github.com/Programming-from-A-to-Z/A2Z-F15/issues/31
https://www.paiklangna.com/
https://github.com/rafaballerini/GitTutorial/issues/200
https://github.com/Yalantis/uCrop/issues/948
Leave a comment